successes

Over half of the most effective cerebral palsy treatments have been discovered in the last 10 years thanks to the collective efforts of our research colleagues and partners around the globe.

Outcome

Achievement

  • Transformed opinions of health professionals regarding cerebral palsy – no longer thought of as incurable or untreatable

  • Cerebral palsy research now regarded as an area of exciting potential and worthy of investment

  • Secured the best researchers around the world to look for causes of cerebral palsy that can be prevented, and one day find a cure.

WORLD’S FIRST CHAIR OF CEREBRAL PALSY APPOINTED


  • More researchers than ever before are choosing to focus their career’s work on cerebral palsy

  • More researchers = quicker results

  • Cerebral palsy is no longer an area ignored by researchers

OVER $37M INVESTED IN 300 PROJECTS IN THE US AND AROUND THE WORLD


  • The incidence of cerebral palsy in babies born less than 30 weeks of gestational age can be reduced by 30%
    when magnesium sulphate is administered to a mother just prior to birth.

  • This means magnesium sulphate can help prevent between 35 and 50 premature infants each year in Australia from developing cerebral palsy.

  • Magnesium sulphate is now being used as an intervention in clinical practice.

SUPPORTED AND ADVOCATED FOR RESEARCH ON USING MAGNESIUM SULPHATE AS A PREVENTATIVE TREATMENT FOR EXTREMELY PRE-TERM BABIES


  • Evidence suggests this treatment may stop the development of cerebral palsy in 1 out of 8-9 of these babies.

SUPPORTED RESEARCH INTO THE USE OF THERAPEUTIC HYPOTHERMIA FOR BABIES BORN FULL TERM, WHO ARE SICK, AND ARE ADMITTED TO INTENSIVE CARE SHORTLY AFTER BIRTH


Researchers can now focus their efforts on 5 priority areas with the potential for the most impact for CP:

  1. Active Surveillance & Specialized Assessments

  2. CP Registers & Networks

  3. Intervention & Best Practice

  4. Prevention & Cure

  5. Translating Research Into Practice (TRIP)

ACHIEVED GLOBAL AGREEMENT ON WHERE WE NEED TO LOOK FOR ANSWERS


  • Researchers can now identify knowledge gaps and define strategies and processes to fast-track breakthroughs in cerebral palsy research.

HOSTED SEVEN INTERNATIONAL CP SUMMITS, BRINGING TOGETHER THE BEST AND BRIGHTEST MINDS IN THE FIELD


  • We now have an international network of scientists, researchers, clinicians, families, people with CP,
    philanthropists, industry, policymakers and funders supporting and promoting high quality
    cerebral palsy research.

CREATED IMPACT FOR CP (INTERNATIONAL MULTIDISCIPLINARY PREVENTION AND CURE TEAM)


  • New areas for preventive research are now underway.

  • Dr Sarah McIntyre is now working on linking data from CP registers with birth defects registers to identify causal pathways to CP

COMPLETED ORIGINAL RESEARCH THAT IDENTIFIES BIRTH DEFECTS TO BE A MUCH MORE SIGNIFICANT CAUSE OF CP THAN ORIGINALLY THOUGHT


  • Influenced the California Institute for Regenerative Medicine to prioritize CP research projects.

SUCCESSFULLY LOBBIED AT THE CALIFORNIA INSTITUTE FOR REGENERATIVE MEDICINE


  • Health professionals can now identify cerebral palsy in babies as young as 3 months rather than
    waiting up to 19 months for treatment.

GLOBAL PROMOTION OF THE GENERAL MOVEMENTS ASSESSMENT TOOL, AN EARLY CP IDENTIFICATION TECHNIQUE


  • Supporting the development of a country-wide CP register for the US

DEVELOPING THE UNITED STATES’S FIRST CP REGISTER


  • The establishment of Xcellerate, an American-Australian Cerebral Palsy Stem Cell Consortium, utilizing American
    stem cell researchers and Australian cerebral palsy registers.

CARRYING OUT GROUNDBREAKING STEM CELL RESEARCH FOR CP, LED BY FULBRIGHT SCHOLAR PROFESSOR IONA NOVAK